From Washington to Beacon Hill, people are recognizing National Rare Disease Day -- a day aimed at raising awareness about those struggling with health issues that can often be difficult to diagnosis. Nationally, around 30 million Americans live with a rare disease - approximately half of whom are children. One of those Americans, Megan Crowley, who was diagnosed with a rare disease that weakens muscles, is the guest of President Donald Trump for his first joint address before Congress on Tuesday night. Meanwhile, local advocates and those impacted gathered at the State House to call attention to the cause. Among them were Katie Brandt, whose husband died of a rare neurological disorder, and Janis Creedon, whose 5-year old son suffers from a connective tissue disorder. Brandt and Creedon later sat down with Jim to share their stories.